40-character summary: Parents of cystic fibrosis infants face confusion, lack support, and delayed treatment due to unawareness of screening tests.
400-character summary: A national survey revealed that parents of infants diagnosed with cystic fibrosis often face confusion and lack of support. Half of new parents are unaware of cystic fibrosis screening tests for newborns, leading to delayed treatment and long-term health impacts. Survey results highlight the need for greater public awareness of newborn screening and stronger partnerships between clinicians and new parents for better outcomes.
May 06, 2024
4 Articles