Rare Disease Day 2026 in Lucknow highlighted urgent needs for better diagnosis, treatment access, and policy reform amid funding limits and coverage gaps.

International Rare Disease Day 2026 was marked in Lucknow with a rally, expert talks, and cultural events organized by RDIF and SGPGI, highlighting the need for early diagnosis, affordable treatment, and sustainable care. Officials stressed patient advocacy’s role in shaping policy, while concerns were raised over India’s Rs. 50 lakh funding cap limiting access for long-term rare disease patients. Some conditions remain excluded from the national policy, prompting calls for broader support and inclusive healthcare.