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flag Jesy Nelson petitions UK to add SMA screening to newborn tests after her twins' diagnosis.

flag Former Little Mix singer Jesy Nelson has launched a petition urging the UK to include spinal muscular atrophy (SMA) in routine newborn screening, following her twins’ diagnosis with SMA type 1 after a high-risk, premature birth. flag The petition, which has gathered over 35,000 signatures, has triggered a mandatory government response and could lead to a parliamentary debate if it reaches 100,000. flag Nelson, who shared her family’s journey on Instagram and met with Health Secretary Wes Streeting, advocates for early detection through the existing five-day-old heel-prick test, emphasizing that timely diagnosis could significantly improve outcomes. flag The rare genetic condition causes severe muscle weakness, breathing and swallowing difficulties, and developmental delays. flag Her advocacy highlights long-standing calls from the SMA community and will be featured in her upcoming Prime Video documentary, *Jesy Nelson: Life After Little Mix*.

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