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Jesy Nelson petitions UK to add SMA screening to newborn tests after her twins' diagnosis.
Former Little Mix singer Jesy Nelson has launched a petition urging the UK to include spinal muscular atrophy (SMA) in routine newborn screening, following her twins’ diagnosis with SMA type 1 after a high-risk, premature birth.
The petition, which has gathered over 35,000 signatures, has triggered a mandatory government response and could lead to a parliamentary debate if it reaches 100,000.
Nelson, who shared her family’s journey on Instagram and met with Health Secretary Wes Streeting, advocates for early detection through the existing five-day-old heel-prick test, emphasizing that timely diagnosis could significantly improve outcomes.
The rare genetic condition causes severe muscle weakness, breathing and swallowing difficulties, and developmental delays.
Her advocacy highlights long-standing calls from the SMA community and will be featured in her upcoming Prime Video documentary, *Jesy Nelson: Life After Little Mix*.
Jesy Nelson solicita al Reino Unido que añada la detección de SMA a las pruebas de recién nacidos después del diagnóstico de sus gemelos.