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flag Former Little Mix singer Jesy Nelson pushes for newborn SMA1 screening after her twins were diagnosed.

flag Former Little Mix singer Jesy Nelson is advocating for early detection of spinal muscular atrophy type 1 (SMA1) after her premature twin daughters, Ocean Jade and Story Monroe, were diagnosed in May 2025. flag The rare genetic condition, which causes severe muscle weakness and a life expectancy under two years without early treatment, has prompted Nelson to push for SMA1 to be added to the NHS newborn blood spot screening test. flag She met with Health Secretary Wes Streeting, who supported her cause, and is leading a petition to expand screening. flag Nelson, who faced pregnancy complications including twin-to-twin transfusion syndrome, shared her journey in the upcoming Prime Video documentary *Jesy Nelson: Life After Little Mix*, set to premiere February 13, 2026, aiming to raise awareness and prevent other families from enduring similar heartbreak.

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