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Jesy Nelson says her twin daughters’ SMA1 was missed by doctors until six months, urging the UK to add newborn SMA screening.
Former Little Mix singer Jesy Nelson revealed her twin daughters were diagnosed with spinal muscular atrophy type 1 (SMA1) at six months old after her mother noticed they weren’t moving their legs, despite multiple doctor visits where symptoms were missed.
She emphasized the critical need for early detection, as treatment is most effective when started soon after birth.
Nelson, who has met with Health Secretary Wes Streeting, is now advocating for the UK to add a simple SMA test to its newborn screening program, a move already standard in most developed countries.
She shared her story to raise awareness, stressing that parental intuition can be vital when medical professionals overlook rare conditions.
Jesy Nelson dice que la SMA1 de sus hijas gemelas fue ignorada por los médicos hasta los seis meses, instando al Reino Unido a añadir el cribado de SMA neonatal.