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flag Jesy Nelson says her twin daughters’ SMA1 was missed by doctors until six months, urging the UK to add newborn SMA screening.

flag Former Little Mix singer Jesy Nelson revealed her twin daughters were diagnosed with spinal muscular atrophy type 1 (SMA1) at six months old after her mother noticed they weren’t moving their legs, despite multiple doctor visits where symptoms were missed. flag She emphasized the critical need for early detection, as treatment is most effective when started soon after birth. flag Nelson, who has met with Health Secretary Wes Streeting, is now advocating for the UK to add a simple SMA test to its newborn screening program, a move already standard in most developed countries. flag She shared her story to raise awareness, stressing that parental intuition can be vital when medical professionals overlook rare conditions.

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