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flag A 2-year-old Illinois girl with Aicardi syndrome battles insurance denials for life-saving medical equipment, despite doctor recommendations.

flag A 2-year-old girl with Aicardi syndrome in Manito, Illinois, faces repeated insurance denials for essential medical equipment like a chest vest to prevent pneumonia and a safety bathtub chair, despite medical necessity. flag Her family says UnitedHealthcare initially rejected claims, citing insufficient lung infections and claiming wiping her down was enough, leading to months of appeals and out-of-pocket costs. flag After media attention, the insurer assigned a case manager and approved the vest after three rentals, but the family paid $1,800 for a new chair. flag Doctors say such denials force families into exhausting battles for standard care, highlighting systemic challenges for children with severe disabilities.

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