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Global Genes receives $1.5 million grant to boost rare disease data platform and support patient equity.
Global Genes, a rare disease advocacy group, has received a $1.5 million grant to enhance its RARE-X data platform using AI.
The organization also announced a new Leadership Council to drive strategic initiatives and support underrepresented patient populations.
Global Genes emphasizes ongoing support for rare disease families, highlighting events and resources aimed at improving health equity and patient engagement in clinical trials.
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Global Genes recibe una subvención de 1,5 millones de dólares para impulsar la plataforma de datos sobre enfermedades raras y apoyar la equidad de los pacientes.