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flag Global Genes receives $1.5 million grant to boost rare disease data platform and support patient equity.

flag Global Genes, a rare disease advocacy group, has received a $1.5 million grant to enhance its RARE-X data platform using AI. flag The organization also announced a new Leadership Council to drive strategic initiatives and support underrepresented patient populations. flag Global Genes emphasizes ongoing support for rare disease families, highlighting events and resources aimed at improving health equity and patient engagement in clinical trials.

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