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British Columbia extends life-saving treatment for girl with Batten disease until March 27.
Nine-year-old Charleigh, suffering from Batten disease, was facing the end of her life-sustaining treatment funding on February 27.
However, the British Columbia Ministry of Health has agreed to fund two more rounds of treatment until March 27 while conducting an urgent review of her case.
Charleigh's mother, Jori Fales, welcomes the extension but urges updating the outdated clinical criteria for the treatment drug, Brineura.
Health Minister Josie Osborne confirmed the temporary extension of drug coverage during the review.
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Columbia Británica extiende el tratamiento para salvar vidas para las niñas con la enfermedad de Batten hasta el 27 de marzo.