2023 MDA Kickstart program receives Rare Pediatric Disease & Orphan Drug designations for Congenital Myasthenic Syndrome.

The Muscular Dystrophy Association's MDA Kickstart program has received FDA designations for Rare Pediatric Disease and Orphan Drug for Congenital Myasthenic Syndrome caused by CHAT gene deficiency. Launched in 2023, the program aims to expedite development of gene therapies for ultra-rare neuromuscular diseases affecting fewer than 1,000 people in the U.S. The initiative collaborates with Forge Biologics for manufacturing support. The Priority Review Voucher program is set to expire on December 20, 2024, unless reauthorized by Congress.

October 24, 2024
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