India's rare diseases budget increased from zero to Rs 82 crore in 3 years, with significant funding for Spinal Muscular Atrophy.

India's rare diseases budget has grown from zero to Rs 82 crore in the last three years, with a dedicated fund established for treatment. The Health Ministry is considering creating a Technical Expert Group focused on Spinal Muscular Atrophy. Funding for SMA patients has increased significantly, rising from Rs 0 in 2019-20 to Rs 35 crore in 2022-23, and further to Rs 74 crore in 2023-24. The government aims to improve access to affordable drugs and treatment for patients with rare diseases through indigenous research, production, supportive therapy, and CSR funding.

August 27, 2024
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