11-year-old Meg Burrow from Roanoke, VA, passed away due to rare genetic condition CTBP-1.

11-year-old Meg Burrow from Roanoke, VA, passed away after a battle with a rare genetic condition, CTBP-1, affecting only 13 people worldwide. The progressive disorder impacted her mobility and speech. Her family, including mother Meredith Burrow, thanked supporters on Facebook and created a GoFundMe to cover expenses.

August 24, 2024
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