Family establishes charity Cure DHDDS for ultra-rare gene mutation, raising £220k in 1st year.

Family founds charity Cure DHDDS to support patients and drive research for ultra-rare DHDDS gene mutation affecting just 70 people globally, causing developmental delays, seizures, and neurological issues; charity raises £220k in 1st year with no treatment available.

August 12, 2024
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