5-day-old Uzziah Bowman, premature with epidermolysis bullosa, faces potential fatal surgery for intestinal blockage.

5-day-old Uzziah Bowman, one of 500,000 babies globally with a severe case of epidermolysis bullosa (EB), a rare skin condition, may not live to see his first Christmas due to his fragile state. Born eight-and-a-half weeks premature, his parents, Jade and Lee, are seeking advice and support from other parents who have experienced similar challenges with their babies. Uzziah also has an intestinal blockage, but doctors believe that operating on it could be fatal due to his delicate state.

August 01, 2024
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